Wednesday, March 07, 2007

March 5th-9th -National MS week


Take some time. Learn. Educate. Hug someone this week with MS!


mdmhvonpa said...

Better to give a person with MS a hug than have a person get an MS Hug, eh?

Say, how you doing?

Pamela said...

That's awesome! Thanks for putting this on your blog! I'm going to do the same - even though I'm late on the Awareness week.
I hope you're doing well.

Jami said...

Thanks for sharing that video, I hadn't seen it. I may add this to my blog as well. Best wishes.

The Patient Connection said...

Hi Guys

Just to let you know the our research blog into MS is still open

Please fell free to go to

Use this to share your story with others make us all better informed

All the best


AJ Hunt said...

I am sure that you have many respsonses like this and I am sorry for that,but my story I am sure is a little different from the rest. My stepmother, bonus mom to her and I, was diagnosed with MS a year ago last week. she has relapsing-remitting MS. My bio parents had gotten divorced when I was very young and to tell you the truth I couldnt stand Kelley when I first met her but when I moved out of my biological mothers house and moved in with her it was like we had never missed a beat. I knew she had MS the day she found out and it really didnt sink in how dibilitating it truely is until I moved in with them. A month ago she went out to California to meet her father for the first time in 34 years she said it was something that she just had to do and I completly understood. About two weeks later she went back out there because her brother had shattered both his kneecaps and had noone to take care of him and being the beautiful person she is she went out there. When she came back she seemed fine and we went on with our daily lives pills here and injections there, i have became her pharmacist so to speak, and then she had to go back out since there was another familial emergency with her brother. That was last week and I talk to her every night on the phone and every night it seems to be getting worse and worse, I got a call this morning about 4:40 in the AM and she was uncontrolable she couldnt walk couldnt think straight and her spine hurts so much that she is just bawling on the phone. SHe called her specialist yesterday morning to try and find a way home early without paying, they found a way and she is coming home today. However, there is one thing that she said to me and im not sure what it means and it makes me cry everytime i think about it. She said she knows she has to go to the hospital and she knows that there are only two options and both of them scare her to death and I cant find the information online what she is talking about. I was wondering if there was anyway that you could provide some information to me. She is in California and I am in Indiana and I feel like I am losing my bestfriend right now and I just dont know what to do and I feel helpless because I cant be there with her please help me if you can.

AJ Hunt


AHEM! Need I remind you that you have NOT posted here in quite you're personal guilt queen, I must say, "Get on it, Missy!"

And how's the wedding planning going? That's still in the future, right?

Linda D. in Seattle, wA

herrad said...

hello Michelle

I have been hugged quite alot lately perhaps that has helped me feel happier.


Anonymous said...

Hi. I am not sure what caused your MS or what your symptoms are. That said, a small minority of people with MS have Lyme-indiced MS. I think everyone with MS should be tested for Lyme via Igenex Inc. It is one of the few labs that can test accurately for Lyme. I was told I could have nothing but MS but it turned out I had Lyme. I am almost cured now after being on antibiotics for 1.4 years, including 2 months of antibiotics. I don't want to get anyone's hopes up because I know most MS cases are not triggered by Lyme, but some other unknown infection or cause. BUt, it couldn't hurt you to look into this. Google Lyme for Igenex Inc. and then order both of their western blot tests through some Dr. DO NOT rely on regular Lyme tests! I tested negative several time on them. They are worthless!

If you have joint pain, in addition to neuro pain, Lyme should definitely be considered.


Jaime said...

Hey Michelle,
I hope that you are doing okay. It has been A LONG time since you have posted. I just wanted to let you know that you, your family, and friends are in my prayers right now. I just heard what happened in the Twin Cities and I am not sure how close you are, but I hope you and all your loved ones are okay. Please let us all know that you are okay!
Take care of yourself.

Anonymous said...

You might be interested in listening to the comments of a man with Multiple Sclerosis talk about autism, Asperger Syndrome, and Multiple Sclerosis and the similar problems encountered by people with these diagnoses.

While the podcast entitled "Special Feature Interview with Douglas Giesel and An Update Interview with Lewis Schofield" is mostly autism-based, Douglas does comment on his MS at length. His words are very inspirational.

Midnight In Chicago puts out these free audio podcasts, and they can be listened to at